Follow Yesu Babu Burra

CT Hemophilia sponsors a young man from India. Hemophilia treatment in India is extremely difficult to obtain. Here in the USA we are able to sponsor kids through the Save One Life Foundation Yesu...

Daniella’s Little Wish

For me was an honor to speak at the State Capitol in Hartford and educated state legislators about rare diseases.I closed the session for Connecticut Rare Action Network powered by National Organization for Rare...