Helpful Organizations and HTC
A valuable list of helpful organizations and HTC — Bookmark this page!
Within the state of Connecticut, there are three HTCs:
The Yale Hemophilia Center (YHC)
Visit Yale HTC
The Connecticut Bleeding Disorders Center
Visit UConn Health
Connecticut Children’s Medical Center
Visit Connecticut Children’s HTC
List of National level Bleeding Disorder Organizations and HTC:
- National Hemophilia Foundation (NHF)
The NHF started in 1948, with the goals of discovering better treatments for bleeding and clotting disorders. The foundation wants to prevent additional problems these diseases may cause by providing education, advocacy and research. Find your local NHF Chapter here
- World Federation of Hemophilia(WFH)
The main purpose of WHF is to find better treatment options for people all over the world that are living with hemophilia and other inherited bleeding disorders. https://www.wfh.org
- Hemophilia Federation of America (HFA) national nonprofit organization that assists, educates and advocates for the bleeding disorders community. https://www.hemophiliafed.org/
- The New England Bleeding Disorders Advocacy Coalition (NEBDAC)
A collaboration from the New England Hemophilia Association, Hemophilia Alliance of Maine, and Connecticut Hemophilia Society. https://www.nebdac.org/
- The Alliance Voice of Community Non-profits http://ctnonprofitalliance.org/
- Rare Action Network https://rareaction.org/resources-for-advocates/state-profiles/connecticut/
- New England Hemophilia Association (NEHA):
NEHA is dedicated to improving the quality of life for persons with bleeding disorders and their families in the New England region.
- Hemophilia Association of Maine (HAM): The HAM is committed to help build a community amongst Maine people who have a bleeding disorder.
- Find your Local Hemophilia Treatment Center (HTC):
You can search for the names and contact information of hemophilia treatment centers and staff that are part of the federally funded HTC network via this CDC directory. This is great resource when traveling out of the state.