List of Online Resources for Bleeding Disorders

Bleeding disorder resources from U.S. Department of Health & Human Services
CDC Hemophilia Homepage
CDC Facts

National Hemophilia Foundation
The National Hemophilia Foundation (NHF). General information as well as a wonderful resource for free literature (HANDI) on blood clotting disorders. Hemophilia Federation of America
The Hemophilia Federation of America is a national non-profit organization that assists and advocates for the blood clotting disorders community. The newsletter, Dateline Federation is published four times a year.
View their recent newsletter

World Federation of Hemophilia
The World Federation of Hemophilia. An international organization offers a listing of hemophilia centers throughout the world.

New England Hemophilia Association
The New England Hemophilia Association (NEHA). The local chapter of NHF. NEHA™’s focus is education and advocacy. Also send out a very informative newsletter. 781-326-7645

Hemophilia Alliance of Maine
The Hemophilia Alliance of Maine is committed to building community amongst Maine people who have a bleeding disorder. HAM is especially interested in connecting those who are adults and have experience dealing with a bleeding disorder with those who are new to it. To that end, HAM intends on supporting a mentoring program within the state of Maine.
View their recent newsletter

Project Red Flag
Project Red Flag, the National Hemophilia Foundation™’s public awareness campaign to help women recognize the symptoms of bleeding disorders. The website is a partnership between the CDC and NHF.
First clothing line dedicated, designed and tested to alleviate and help prevent bleeding-with padding on the shins, knees and buttocks. 707-823-1482

Medic Alert Foundation
A website to order medic alert bracelets or necklaces. 1-800-432-5378

Centers for Disease Control and Prevention
The Center for Disease Control and Prevention serves as a national focus for developing and applying disease prevention and control, environmental health and health promotion and health education to improve the health of the people of the United States. Hemaware
Hemophilia and bleeding disorders magazine of the National Hemophilia Foundation.

Save One Life
Save One Life is a registered nonprofit international organization that offers individuals, families, companies and/or organizations the opportunity to sponsor a child or adult with a bleeding disorder in a developing

LA Kelley Communications
LA Kelley Communications is a comprehensive resource for original books, newsletters and programs to help patients and families with bleeding disorders. It publishes the widest array of children’s books on hemophilia.
978-352-7657 or
View their recent newsletter

Hole in the Wall Gang
No-fee camp for youth, ages 7 to 15, with cancer and serious blood diseases, who reside in New England, New York or New Jersey.

Connecticut Children’s Medical Center
Extensive information on facilities, services and staff, with special kid’s area and Connecticut Children’s Miracle Network. 1-860-545-9000 Yale University School of Medicine
Comprehensive information on hospital and schools which comprise the health organization.

University of Connecticut Health Center
The University of Connecticut Health Center is a world class biomedical research center, inpatient and outpatient health care facility and medical school.