Online Resources

  • cropped-main_slide1.jpgNational Hemophilia Foundation
    The National Hemophilia Foundation (NHF). General information as well as a wonderful resource for free literature (HANDI) on blood clotting disorders.
  • Hemophilia Federation of America
    The Hemophilia Federation of America is a national non-profit organization that assists and advocates for the blood clotting disorders community. The newsletter, Dateline Federation is published four times a year.
    View their recent newsletter
  • World Federation of Hemophilia
    The World Federation of Hemophilia. An international organization offers a listing of hemophilia centers throughout the world.
  • New England Hemophilia Association
    The New England Hemophilia Association (NEHA). The local chapter of NHF. NEHA™’s focus is education and advocacy. Also send out a very informative newsletter. 781-326-7645
  • Hemophilia Alliance of Maine
    The Hemophilia Alliance of Maine is committed to building community amongst Maine people who have a bleeding disorder. HAM is especially interested in connecting those who are adults and have experience dealing with a bleeding disorder with those who are new to it. To that end, HAM intends on supporting a mentoring program within the state of Maine.
    View their recent newsletter
  • Project Red Flag
    Project Red Flag, the National Hemophilia Foundation™’s public awareness campaign to help women recognize the symptoms of bleeding disorders. The website is a partnership between the CDC and NHF.
    First clothing line dedicated, designed and tested to alleviate and help prevent bleeding-with padding on the shins, knees and buttocks. 707-823-1482
  • Medic Alert Foundation
    A website to order medic alert bracelets or necklaces. 1-800-432-5378
  • Centers for Disease Control and Prevention
    The Center for Disease Control and Prevention serves as a national focus for developing and applying disease prevention and control, environmental health and health promotion and health education to improve the health of the people of the United States.
  • Hemaware
    Hemophilia and bleeding disorders magazine of the National Hemophilia Foundation.
  • Save One Life
    Save One Life is a registered nonprofit international organization that offers individuals, families, companies and/or organizations the opportunity to sponsor a child or adult with a bleeding disorder in a developing
  • LA Kelley Communications
    LA Kelley Communications is a comprehensive resource for original books, newsletters and programs to help patients and families with bleeding disorders. It publishes the widest array of children’s books on hemophilia.
    978-352-7657 or
    View their recent newsletter
  • Hole in the Wall Gang
    No-fee camp for youth, ages 7 to 15, with cancer and serious blood diseases, who reside in New England, New York or New Jersey.
  • Connecticut Children’s Medical Center
    Extensive information on facilities, services and staff, with special kid’s area and Connecticut Children’s Miracle Network. 1-860-545-9000
  • Yale University School of Medicine
    Comprehensive information on hospital and schools which comprise the health organization.
  • University of Connecticut Health Center
    The University of Connecticut Health Center is a world class biomedical research center, inpatient and outpatient health care facility and medical school.