Board of Directors

cropped-main_slide1.jpgClick on our Board Member names to read more about them.

Maryann May, Executive Director
Dennis Mackey, President
Sharon Liss, Treasurer
Secretary Position Vacant
Jennifer Banks, Advocacy Director
Stacie Hebert
Meagan Murray
Janine Achury
Nemorio (Nemo) Delgado
Katherine (Katie) Rosevear
Rebecca (Becca) Smith

 

Interested in becoming a CHS Board Member?
CHS is always looking for those who support CHS in its mission to improve the quality of life of members of the bleeding disorder community, through education, financial support and supporting scientific research that is aimed at finding a cure for hemophilia, If you are interested in becoming a Board Member please send a letter of interest and your resume via e-mail or snail mail to CHS.

The Connecticut Hemophilia Society, Inc.
P.O. Box 548
Windsor, CT 06095


Maryann May
Executive Director

Maryann MayMaryann is a single mother of an adult son, Max, with hemophilia. Maryann has always held the bleeding disorders community close to her heart. Before stepping in to the role of Director she had been an active board member of CHS, a NEHA volunteer, NHF and HFA participant, a member of COTT, and also has been an advocacy contributor at Washington Days.

If you are lucky enough to know Maryann, you know what a friend and confidant she is to so many. Maryann brings her passion for service to the table, and her gift of compassion for others makes her a perfect fit. Maryann is articulate, well read and she will stand up for what she believes in, our community.



Dennis Mackey
President

Dennis MackeyThe Connecticut Hemophilia Society, Inc., is pleased to announce that Dennis J. Mackey, recently became President of the Connecticut Hemophilia Society.

Dennis lives in Windsor, CT with his wife Denise and their son Sean. Sean is 19 and has severe Hemophilia, Factor VIII deficiency. Dennis has been involved in the Hemophilia community for the past 15 years. Dennis is a member and active contributor to many organizations, including: NEHA, NHF, and the HFA.

Dennis has been actively involved with "Dad's In Action" and volunteered to be Santa for several years at the NEHA holiday party, and most recently at the CHS holiday party and plans to continue this "tradition". With a background in the culinary field, Dennis has also helped to cater events and has been involved with NEHA Family Camp and LIT service project.



Sharon Liss
Treasurer

Sharon Liss Sharon joined the board in 2014 as treasurer. She has the difficult job of keeping track of the details of the CHS finances, accounts and billing as well as preparing CHS’s tax returns since its inception. She has been working as controller at PDS Engineering and Construction for 5 years. She has also worked in public accounting for 11 years and is a CPA. Sharon resides in South Glastonbury with her husband Robert and their youngest of two sons Justin. Sharon has a nephew with severe hemophilia.

Welcome Sharon!



Jennifer Banks
Advocacy Director

Jennifer Banks Jennifer Banks is the Advocacy Director on the CHS Board of Directors. She has been on the board since 2013. Jennifer lives with her husband, Raymond, in Weston, CT with her two children, Devin(born in 2006 with severe Hemophilia A)and Alexis (born in 2008. Jennifer is active in advocacy for CHS attending Washington Days and NHF Annual Meetings each year. Previously, Jennifer was the Treasurer for the Norfield Children's Center Board of Directors. Jennifer is a Professional Development Manager at McKinsey & Company and holds a Bachelor of Science in Mechanical Engineering from Virginia Tech and a Masters of Business Administration from Harvard Business School.



Stacie Hebert
Board Member

Stacie Hebert Stacie has been on the board for CHS since its beginnings. She is our main organizer and planner. She has been instrumental in setting up the kid's activities at events and coordinates our infusion classes. Stacie has been a driving force that keeps our activities on track and somehow manages to do this while keeping her sense of humor and sanity! Stacie lives in with her husband, Jeff in Southbury CT. They have 2 children, Nicholas (with hemophilia) and Mackenzie.



Meagan Murray
Board Member

Meagan MurrayMeagan joined the Connecticut Hemophilia Society board in 2016. She is a single mother of her young children, Madeline and T.J. Both Meagan and T.J. have Von Willie Brands disease; Meagan was diagnosed in the mid 90's and became an active member of the bleeding disorder community when her son was diagnosed in 2011. Meagan is an active NEHA, HFA, and NHF participant as well as being an active board member for CHS. In 2015 and 2016, Meagan joined the Arizona Hemophilia Society for their NOW conference which is a weekend dedicated to Von Willie Brands.

Meagan graduated from Notre Dame in 2001 with a degree in Media Art. She currently lives in Rhode Island where she is a System Analyst for a bank and is the After-School Activity Coordinator for her children's school.



Janine Achury

Janine Achury Janine joined the board in 2016. She has VWD Type 1 and was diagnosed in 2013 and her daughter, Daniela, has severe VWD Type 1C. Daniela was diagnosed in 2008 when she was 6 months old. Janine was an advocate for bleeding disorders long before she was diagnosed. She has been educating people in her community and through social media sites where she offers information about VWD.

Janine has a Business Administration degree with an emphasis in Business creation. When she came to USA in 2000 she found a community group where she was helping people in the Latin community find jobs.

She Graduated from PLTI (Parents Leadership Training Institute), and PEP (People Empowering People), a government program created to advocate for families and children. Janine and her husband have been involved with different nonprofit organizations around the Connecticut area since 2004.

With the support of Janine and her husband Nemorio, her daughter Daniela founded Daniela's Little Wish, an organization that offers custom birthday cakes at no cost for kids living with life threatening illnesses, children with bleeding disorders and other chronic illnesses.



Nemorio (Nemo) Delgado
Board Member

Nemo Delgado Nemo Joined the board in 2016. He graduated from the PLTI (Parents Leadership Training Institute) and PEP (People Empowering People), both government programs created to advocate for families and children. Both his wife and daughter have VWD. He advocates for people with bleeding disorders at events around the United States.</p

Because he knows how a bleeding disorder affects health, body and mind he is very involved and proud to aid in promoting women’s issues. He is finding ways to teach other fathers and husbands how to support women with bleeding disorders.</p

Nemo has a background in Computer Information Systems but found that he has a creative vein for culinary arts and with his wife has a small bakery where he shows his artistic ability by creating art with sugar. </p

He and his family are involved with the community and enjoy helping families by donating cakes and goodies to nonprofit organizations for events and fundraising throughout CT and part of NY. They focus on baking smiles for children with chronic, severe illnesses and disabilities.



Katherine (Katie) Rosevear
Board of Directors

Katie RosevearKatie resides in Wallingford, CT with her husband Rob (vonWillebrand Disease Type III), daughter, Gwendolyn (vWD, Type I severe, DDAVP non-response), and their German Shepard, Harley. She has worked within the health insurance industry for the past 10 years and currently works as an investigator for insurance fraud within the mental health field. Katie has been involved with CHS and NEHA since 2016 and recently attended BA-CON to learn more about advocating for the community. She is actively educating herself on vWD and other bleeding disorders so that she can properly advocate for her family and the community. When Katie is not spending time with her family she enjoys painting, spending time with her friends and being involved with her book club.



Rebecca (Becca) Smith
Board of Directors

Rebecca resides in Groton, CT and became involved with CHS and NEHA due to her Brother-In-Law (Type 3) and Niece (Type I severe, DDAVP non-responsive) both having vonWillebrand Disease. She haves worked as a Speech Language Pathologist in Early Intervention for 13 years and spend her day traveling the shoreline visiting homes and daycares. She holds a BA from UConn in Communication Sciences with a concentration in Communicative Disorders and a minor in Linguistics and a MS from Penn State in Communication Sciences and Disorders. In her free time, besides chasing her niece around, she enjoys photography, digital scrapbooking, cooking, and visiting the local vineyards.

Interested in becoming a CHS Board Member?
CHS is always looking for those who support CHS in its mission to improve the quality of life of members of the bleeding disorder community, through education, financial support and supporting scientific research that is aimed at finding a cure for hemophilia, If you are interested in becoming a Board Member please send a letter of interest and your resume via e-mail or snail mail to CHS.

The Connecticut Hemophilia Society, Inc.
P.O. Box 548
Windsor, CT 06095